One of the most valiant heart hero's I've ever been privledged to meet passed away on Saturday night. Isaac was born 10 days before Elaina (New Year's Day 2008) with HLHS. His struggle was a long, and difficult one. He was only able to spend 9 days at home with his family, the rest of his life was spent in the hospital. Most of the time was in the PICU. His parents have become close friends to me and my heart is just broken for them right now. Isaac had been working on going home, in fact he was extubated the same day as Elaina. From what I understand from Jessica (his Mom) he aspirated after some medication was given through his NJ this afternoon, and they weren't able to clear his lungs. His family has a blog as well as a Care Page. Please keep this family in your prayers. They are amazing. Isaac, I will never forget you!
Love,
Hollie
My cute little Elaina Bug
Grandpa's favorite smile!
Ben and Elaina, my luverbugs
Someone loves her big brother!
5 Days Old
Mom's First Kiss
Di George Syndrome Families
About Us
- Hollie
- North Salt Lake, UT, United States
- I am the lucky mother of two extra-ordinary children. My oldest is Ben. He is 10 years old and has more energy than even he knows what to do with. He is in 4th grade and is growing faster than I can keep up with him. My baby is Elaina. She was born in January of 2008. Elaina was born with some serious health problems. She has a Complex Congenital Heart Defect that includes: Pulmonary Atresia with an intact Ventricular Septum, right aortic arch, a leaky tri-cuspid valve and a large sinusoidal connection between her right ventricle and left coronary artery. She also has a chromosomal disorder called DiGeorge Syndrome or 22q11 deletion. In plain English, she was born with a rare but serious heart defect, as well as some other challenges. She had a bi-directional Glenn done in June of 2008. She is fed by g-tube, and continues to grow and amaze the doctors with her strength. She spent 18 months inpatient at South Davis Community Hospital after her Glenn procedure. She finally came home in April of 2010 and is thriving! She's in pre-school and loving life! Oh the adventures we have!!!!!
Family Photo
Mother's Day at home
Ben
1st Day at Tae Kwon Do
Elaina 4 months old
May 11 2008 - 1st Mother's Day
2 comments:
My heart is very heavy with reading about Issac's passing. I feel very blessed to know that he is at peace and can now rest after being so strong on his test here on earth.
Heart Hugs
Melynda, Sam, & Mariska
Our hearts mourn and our eyes are full of tears at the loss of sweet and valiant Isaac. I too have felt the privilege to have known him.
Heart hugs,
Emily and Mike
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