Wednesday, July 23, 2008

Plugging Along

Elaina is continuing her turtle steps. Very slow, but generally in the right direction. The main focus right now is getting her off the high flow oxygen. She started out last Saturday at an 8 liter flow. This morning they got her down to 5 liters, with the FIO2 set at 35%. Her sats aren't that great at the moment (in the 50's and 60's), but they are watching her and hoping that she will tolerate the wean. Her nurse said that her color looks about the same. I guess they changed her bedding and put her on a purple blanket, so it's not helping her skin tone! Silly!!

The plastic surgeon came and looked at the hole in her groin. His recommendation was to pull the broviac and the hole would heal fairly quickly on its own. Grrr. We're literally between a rock and a hard place at this point. If we leave the broviac, we increase the risk of infection. If she were to get septic, it could cost Elaina her life at this point. She's just not strong enough to fight off a serious infection. But, pulling the broviac means that we have no more IV access or ability to draw blood work. She would have to be poked every time they want to check a blood gas or check lab work. She is a VERY hard stick and this is not a pleasant thought. BUT, sepsis is nowhere I want to go, so I think we'll be pulling the broviac in the next couple of days. She has an IV antibiotic that she's almost finished with at this point, so once she's done we'll begin discussing the options. Poor kiddo. We just keep having these little setbacks. We're transitioning all of her IV medications to oral medications for when we lose the broviac.

I've spent the last couple of nights with Ben down at our house in Orem. I hadn't slept in my own bed for almost 6 weeks!!! I had to do an emergency trip to the grocery store last night too. There was nothing edible in my fridge and Ben was going crazy with the lack of options for breakfast and lunch yesterday! I've got lots of work to do to get this place ready for Elaina to come home. I'll be spending more time in Orem and less at the hospital as I get ready to bring this little lady home. So much to do and so little time to do it in!

My Mom and Dad brought my Grandma to visit Elaina yesterday. It was a very nice visit. My Mom was able to hold Elaina for the first time since May! Elaina was awake and was absolutely precious. It was wonderful. I was so wrapped up in the moment that I completely forgot that I even owned a camera. What a slacker I am!!


Auntie Liz said...

I'm glad to see this update. It's good to know that her color is still good and that she's succeeding at her small steps. I wish the docs would take their time and not rush her! I guess I don't understand why they can't figure out a way to keep her broviac wound clean. Aren't there waterproof bandages? Or am I just being clueless again?

Hope to see you tomorrow at Grandma's birthday party.

Love, Liz

Gourley Family said...

Wow, happy to hear things are going so well! This is such wonderful news! I ended up working today, but am coming up Friday or Saturday!
Heart hugs,

Vaeh's Blog said...

Sounds like things are going well for the little bug, but this whole broviac thing?!? I think she just isn't ready to give up all that attention from the medical staff yet - lol!

Hopefully you won't have too much time to get things ready because she's coming home! Praying that she's back in Orem soon!

carolyn q said...

I can come help you get things back into shape. So, let me know when you would like some help and presto. . .I am there :0)

Heart Hugs,

Mimi said...

We will be in the area soon. If we don't get too wrapped up with stuff, we will get a hold of you. Hugs!

Pam said...

I have been away from a computer for about a week or so and was so happy to come back and see your cutie doing so much better. Ironically, I was at a conference in MI for Digeorge Syndrome. My little one has the Syndrome as well as a heart defect. She is now 3 yrs. Pulmonary Atresia makes things a bit more difficult but it looks like you have a fighter on your hands!
Again, glad to see and hear that things are moving in the right direction.