The first thing I would like to do is thank everyone that participated in fasting and prayer for Elaina today. I truly felt comforted today.
I am so sorry I did not post yesterday. I just really did not know what to say. Elaina did not show any signs of improvement on Saturday. In fact her hands and feet were cold and very dusky. The scariest part was to see the blueness of her nose and lips. Her PO2's were averaging 27 and her saturation level never got above 51. At my request, the nursing staff moved us to a "private" room in the back corner of the PICU so that I could have some seclusion. This room is so much nicer. Not only is it a little bit larger, it's away from the hustle and bustle of the PICU. There isn't a window in our bed space, but there is one in the room next door, so we do get some natural light. There is also a chair that pulls out into something resembling a bed (not very comfortable, but who cares). I have this at the back of the room and can "lay" down without having to leave Elaina. We dimmed the lights and had Elaina's Baby Einstein Lullaby CD on repeat creating a very soothing environment. I was able to hold Elaina for almost 3 hours again last night. By the time we wrapped up, I was so emotionally drained that I couldn't think straight so I went to bed and cried myself to sleep. It was a very discouraging day.
I woke up with a start early this morning (I actually jumped out of bed) as a Code Blue was announced over the hospital intercom. It wasn't Elaina (thank Heavens!!!!!), but after that huge adrenaline rush I couldn't go back to bed, so I just got up and went in to be with my little bug. I walked into her room and was greeted with a smile by her attending and nurse. They'd just gotten a blood gas, and her PO2 was 38 and her saturation was 72!!!!!! Not only has she stayed in this range all day, they have been able to wean some of her ventilator settings! She is also looking so much more pink than she has in days. I wouldn't say that the doctor was optimistic, but she did finally talk with me about a plan if Elaina continued to improve. I know that this is just a teeny tiny step in the right direction, but at least it is in the right direction. I think that she is getting better because of all the fasting, prayers and faith in her behalf. I really do. And even if it's only this one day of improvement, it's one day more than most of those caring for her thought that she'd have. I am so grateful for this day. Elaina is so amazing. She is strong and she is beautiful and the power of her spirit is strong.