Monday, July 21, 2008

NJ or NG?

We had another pretty good day today. There wasn't a whole lot that really went on today. The doctors decided to let Elaina rest and get used to the high flow before they start trying to wean her onto regular oxygen. They actually talked about discharge in the next 2 weeks if all continues to go well. Elaina won't transition to the surgical unit, they want to limit her exposure, she'll just go straight home from the PICU. It's still far enough in the future that I don't know a whole lot of details, but at least they are talking about it. The only thing that would alter this idea is the stupid femoral art line wound:

You can't really see it in this picture, but the broviac insertion site is in her thigh (under the nurses hand). If you were able to look up close into the large hole, you would be able see the broviac before it enters the femoral vein. (I couldn't get my camera to focus well that close up....) They are going to have the plastic surgeon and possibly vascular surgeon look at it tomorrow and see if she needs to have any type of surgery to repair this. It doesn't look infected at the moment, but we really don't need it to get septic and have her die from a stupid infection after she's fought so hard! It's in such a bad spot. Every time she poops her pants they have to change the dressing. They try to pack the hole with sterile gauze and then put tegaderm over the top, but it's still a huge infection risk. I'll let you know more about this when I know what's been decided.

The only other eventful moment today was the realization that Elaina's NJ has moved into the NG position. She had an "event" where she gagged and threw up and the nurse realized that the medication that had just been given along with formula, was mixed with the mucus that came up. Since she is being fed in her small intestine, this shouldn't happen. So they took an x-ray and sure enough, the tube is in her stomach. She'll get it replaced Monday morning. For the time being they've stopped her feeds, and have her on IV fluids. They are still giving her medications through the now NG, but they don't want to risk her throwing up formula and aspirating into her lungs. She doesn't seem to mind though. Look how peacefully she's sleeping tonight:

I just had to take a picture of her stats too! Best they've been since before surgery!!!!

(Heart rate 134, Respiratory rate 40, Oxygen Saturation 86%)


Once again, I must express my gratitude. Gratitude for the support and encouragement that has been shown to me and gratitude to my Heavenly Father for the miracle that has taken place in our lives. What a roller coaster ride we're on!


Amber said...

I am so....completely happy for your and your family! What a miracle you have allowed all of us to witness....thank you. I'm still praying for all of the "kinks" to be worked out...

carolyn q said...

I hope something can be done to help with that wound so it doesn't get infected. It sounds like they are trying to be on top of it all.
Oh. . just think what these past two weeks have brought. I hope that the next two weeks are just as productive in her healing so she can be at home with her family.
As aways. . .keeping your sweet family in my thoughts and prayers.
Heart Hugs,

Mimi said...

Wow! she's so tough! I hope she will always be that much of a fighter. What a great attribute to have! :D

Vaeh's Blog said...

What a tough cookie! She's looking really good in the pictures & what wonderful numbers - 86%?!?!?! That's great!

As for the NG/NJ thing - Vaeh had the NJ because she was throwing up & that was supposed to keep her from throwing up. Needless to say, she didn't stop throwing up until a few weeks ago after her 3rd open heart! Matter of fact, she did better with the NG than the NJ! Just our two cents on that topic!

Hope she continues to stun them with her improvements! Always praying...

Lots of luv & hugs!
Tina & Vaeh:0) (Jon & Gabby, too!)

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Megz said...

This is geat news Hollie! You must be so pleased with her progress. I just can not believe how much progress she's made since two weeks ago. I hope she goes home soon!