Thursday and Friday were both good days for Elaina. She had her very first spontaneous trial yesterday! It lasted for 30 minutes and she did GREAT!! I am so proud of her. She's had 3 more today, and so far it's looking really good. She'll be weaned off her nitric by tomorrow, so maybe by some time next week she can be extubated! Right now her spontaneos trials are only 30 minutes. We'll go up to an hour on Saturday and then talk about it. This is such a different scenario than last week at this time. My hopes are high, but the docs keep telling me that we're not out of the woods. On a scary note, her broviac site is infected. So far nothing has shown up in her blood cultures, but the site is oozing and inflamed. Infectious disease is looking at it today, so I'm hoping that everything will be okay.
Anyway, I have TONS more that I want to post, but no time to do it in. I will post much more on Saturday night. I actually decided to leave the hospital again and I'm spending the night with Ben at my Grandma's so I don't want to take away from my time with him.
Thank you all again for your continued love and support!!
Hugs,
Hollie
10 comments:
Yay!!!
Such great news!! You go, Elaina! What a star you have on your hands Hollie! I'm so glad that things are finally going in a great direction for you!
Always praying that Elaina continues to stun the docs with her progress!
I don't know how else to contact you but to comment...I am glad you have such great news to share! thats awesome!
I wanted to get in contact with you cause I am due to have my turner syndrome hypoplastic left ventricle baby girl sept 12, and I could use support and prayers and encouragement. Our blog is www.caringbridge.org/visit/babyjosiekay I would love to hear what you have to say about my blog in my guest book on there...so thank you for your time to stop by and say hi. I will bookmark your blog and check back periodically to see how your baby girl is doing and catch up with all that you went through to where you are now so that way I can be even more encouraged. If you know anyone else that has both turners and hypoplastic left ventricle could you send them my way so I can get even that much more encouraged its so hard to find people like us who are facing this...its a lonely place out here with no one to relate to...so thanks for sharing your experience on blogger.
Sincerely,
Rabeka Jo D
PS. my prayers are with you and your family through your journey of LIFE...again thank you for being online and sharing your story. I look forward in hearing form you soon!
Happy half Birthday Elaina! Please know I am thinking of and praying for your family. I am so thrilled to hear of her improvement and hope for more good news.
love, hugs & prayers,
Christina
Jacob's momma
Glad to hear things are going so well! We are coming up in later this afternoon to visit my niece, and I probably will stop in to say hi! Yeah for the spontaneous trials! She is a miracle and a fighter~!
Heart hugs,
Emily
I'm so glad sweet Elaina has been doing better what a tough little princess!
Diane Mann
YEAH, ELAINA!!! You're mommy knew you could do it, she had faith in YOU all along!! We are so happy things are going well. We have loved reading all the positive news on the blog this week. Your faith and resolve has paid off and we couldn't be more thrilled. We are still praying for your family.
Love,
Diane Feinauer
Yay..great new!!
I am hoping that the weekend continued with more good news and you were able to spend some bonding time with Ben. I am sure he enjoyed his time with you.
As always keeping your sweet little family in my thougths and prayers.
Heart Hugs,
Carolyn
Happy semi-birthday!
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