So, I got about 4 hours of sleep last night. My sister Becky finally forced me to lay down in the early hours of the morning. It was so hard to leave Elaina's beside last night. I finally made a deal with Becky and Elaina's nurse that after we got 2 good blood gases in a row, I would go to bed. All in all, Elaina had a stable night. She has continued to be stable this morning as well. Right now her saturations are fluxuating between 70 and 73. Pretty darn good considering that she was so (scary) low yesterday prior to surgery. Her blood gases are continuing to be stable, so we're all just holding our breaths for now hoping that this surgery was what needed to happen.
She's still on the nitric oxide, but didn't need to be on the oscillator this time. They've weaned her oxygen down to 75% and are aiming to get her to 50% by tonight. She hasn't needed one of her blood pressure medications so far, and so we're just hoping. It is truly in the Lord's hands at this point. Honestly, I have such a peace in my heart. I feel that she is going to survive, and I refuse to even entertain thoughts that she might not!
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20 comments:
I found your blog through Pam & Rhett's site. I'm so sorry to hear your little one is so ill. I'll be thinking about her and hoping for a swift and full recovery!!!
Glad to hear she's doing well. You're in my thoughts and prayers. She's a fighter Hollie. Hang in there turtlebug
You and Elaina are in our prayers.
Pam (Rhett's mommy) told me about your blog and about your little girl. I am sorry to hear about your struggles. It sounds like she is quite the little fighter. I have also been blessed with one of those little fighters. Our daughter Isabella was also born with DiGeorge Syndrome but her heart defect is Truncus Arteriosus. She also has had very sick lungs and needed a trach and a vent. So that is where we are now. She is almost 18 months old now and has two open hearts.
Keep up the faith because it is what will pull you through. And when God gives you that overwhelming peace, take it and embrase it. I think the most peaceful I ever felt was the night that Isabella was most critical. So I knew if I could feel peace at a time like that, then it was truely from God. You and your daughter are now in my thoughts and prayers. Feel free to stop by our blog and let me know if you just need another mom to talk to.
Thoughts and Prayers Always
Megan
Whew! I've been checking your blog since I got up at 7:30 (EST) this morning! I'm so glad that she had a fairly stable night & that you were able to get a little rest. Praying that she continues to be stable & improve from here on out!
Always Praying!
((Heart Hugs))
Jon, Tina, Gabby & Vaeh:0)
I'm so glad you updated; I have been going crazy over here! Stay positive. Everything you're doing is the right thing to do: just love your baby! The rest will fall into place. Elaina is in the Lord's hands, which are the BEST hands to be in. **hugs**
Wow! I just checked in and cannot believe all that I have missed! I am holding your family in prayer.
amber
I found your blog through Rhett's Journey. I am glad to hear that she had a stable night. I will pray that little one continues to improve.
Hi, I found you through Rhett's site. I'm hurting for you and your baby right now. My little guy was in the ECMO room for a week last summer. Thankfully he did not have ECMO, but reading your story took me back to those frightening days. Take heart, many are praying for you.
Isaac had to have his aorta connected to his Pulmonary Artery also...to get more blood flow to the lungs. BUT, they had to do his next procedure in 3-6 months...is that when they told you that Elaina would need her next surgery??
You guys are all in our prayers. Just smoochy moochy on her...she's SO cute...I know the docs and nurses are taking very good care of her!
Kathy
I am going to come see you after I shower....my sister is here with Rhett.
I am glad she was stable throughout the night. There was peace last night in the waiting room, no doubt about it.
I know that she is going to do good. I just know it.
((HUGS))
Found you through Rhett's page. You are all in are thougths and prayers
I'm glad you were able to get some sleep - even if it was just a few hours. See if maybe you can get a rocking chair to sit in that way you can drift off but still be in the room.
I'm so gratefull your heart is at peace. We'll be praying and thinking of her and you.
HUGS
Melynda and Family
Pam mentioned your blog. I'm so grateful things are going so well. We are praying for little Elaina and you. I'm so grateful you are at peace. I pray that peace will stay with you.
Loves and prayers to the Turtlebug! And take care of yourself too, please!
I hope there was more improvement today. We will keep praying and thinking of you!!!
Christina
from IHH
Jacob's momma
I am coming to your blog from Pam and Rhett's. I just wanted to let you know that I will add you and your family to my prayers. Your daughter is beautiful and seeing her picture really touched my heart. I had a daughter, Ava, January 2008 as well. She was born with Turner's Syndrome and had a hypoplastic left heart. She too went through a battle and fought very hard. She went to Heaven May 7th.
Although I haven't been able to read your whole blog yet, I think your daughter (and son) are very lucky to have you as their mommy...and as you probably already know, you are just as lucky!!!
Stay strong (I know it is easier said then done) and know that many, many people are praying for you.
Amy
Hello,
I read about you through Rhett and Pam. I read some of your journey and can tell she is quite the fighter. I will pray for her to have a full recovery so she can go home with you and her wonderful big brother.
Love Kaci
I will be praying for Elaina tonight and hope that the afternoon and evening went smoothly. You're in my thoughts.
Kristine
I haven't been able to check on the site for the past 2 days and man I was surprised when I just read all the updates. Hollie, you are such a strong woman and have a little fighter on your hands. My prayers are going out to you both. This is in God's hands now. Your faith will pull you through. Just take it one day at a time.
Love,
Vanessa
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