Not too much new to report today. They are letting Elaina have a rest day. They weaned her a little bit on her pain meds and sedations earlier, so it was decided to just let her "hang out" today and get used to the lesser amounts of medication. She isn't really very alert today. She does wake up when I talk to her and love on her, but then it's right back to sleep. The nurse practitioner said that she hasn't needed to give her any medications to counteract the effects of less pain medication and sedation. They did start Elaina on a new medication a few days ago. I've been trying to think of a good way to blog this, but to put it bluntly, she's on Viagra 4 times a day! HA! It is a vasodilator used for pediatric pulmonary hypertension and they used this to help wean her off the nitric oxide. It is administered through her NJ tube, so this is something that she can come home on! It made me laugh. Just think, I'll get to tease her about this when she's a teenager! :)
She still has a low grade fever today, still no answers as to why. Poor kiddo. No wonder all she wants to do is sleep. She has been throwing up some stomach acids today, so they put an NG with a suction in her other nostril to help keep her stomach empty. They also just wrote an order to restart her reflux meds, so hopefully that will help her as well. Anyway, she's sleeping soundly, so I'm going to give her some kisses and go home. My Dad just got here from Nebraska and he and Ben are waiting for me!
Thank you all again for all the kind thoughts and especially the prayers. I know that we are witnessing a miracle in our lives.
Hollie and Elaina (and Ben of course!)