Elaina had a pretty good night last night!! Dr Hawkins (surgeon) said that he is pleased with her progress and is going to close her chest this morning. Her lungs are also sounding a little bit better this morning. Her chest x-ray doesn't really look any better, but the Respiratory Therapist said that she is hearing better breath sounds. She also told me that once Elaina's chest is closed she can do a little better suctioning to try and clear up some of these secretions.
Words just cannot express my gratitude for the prayers that have been offered in our behalf. Elaina was not given the best prognosis after her last surgery, and her life is truly a miracle.
Thank you all so much!
I will post again later. I've been told that we will probably have a day or so of setbacks after her chest is closed. Although she's stable, she is still very weak and she doesn't have a lot (if any at all) of reserve energy.
Love,
Hollie
My cute little Elaina Bug
Grandpa's favorite smile!
Ben and Elaina, my luverbugs
Someone loves her big brother!
5 Days Old
Mom's First Kiss
Di George Syndrome Families
About Us
- Hollie
- North Salt Lake, UT, United States
- I am the lucky mother of two extra-ordinary children. My oldest is Ben. He is 10 years old and has more energy than even he knows what to do with. He is in 4th grade and is growing faster than I can keep up with him. My baby is Elaina. She was born in January of 2008. Elaina was born with some serious health problems. She has a Complex Congenital Heart Defect that includes: Pulmonary Atresia with an intact Ventricular Septum, right aortic arch, a leaky tri-cuspid valve and a large sinusoidal connection between her right ventricle and left coronary artery. She also has a chromosomal disorder called DiGeorge Syndrome or 22q11 deletion. In plain English, she was born with a rare but serious heart defect, as well as some other challenges. She had a bi-directional Glenn done in June of 2008. She is fed by g-tube, and continues to grow and amaze the doctors with her strength. She spent 18 months inpatient at South Davis Community Hospital after her Glenn procedure. She finally came home in April of 2010 and is thriving! She's in pre-school and loving life! Oh the adventures we have!!!!!
Family Photo
Mother's Day at home
Ben
1st Day at Tae Kwon Do
Elaina 4 months old
May 11 2008 - 1st Mother's Day
7 comments:
Yay! I'm so glad that they are closing her chest today! What a little fighter. Loves to you both!
Yes...tell them to CLOSE HER UP, and get that junk out of her chest...
then, they can get that tube out and you'll be able to hold her soon!!!
Is she still on TPN?? Watch them with that stuff, it's not good for their livers...tell them your baby needs her milk!!!
Still sending prayers your way!
Sending lots of prayers your way for a good day and that all goes well with the chest closing.
Love
Megan
Awesome that they are closing her chest! I know one of the first things I always do with Vaeh after surgery is to put my hand on her chest to feel her heart beating & say a little prayer of thanks! (She's been luck to never have needed to be left open!) Next step - hold her in your arms! That's one of the best feelings in the world! Hopefully it won't be too much longer. Still praying that she flourishes after that little chest is closed!
XOXOXOXO
Praise God! This is just the news I wanted to hear. I'm so proud of that little girl of yours.
I'm so glad to hear that she is fighting so hard and staying so well under the circumstances. Soon she will be back in your arms! **hugs**
p.s. cutie new site layout! :)
Just checking and happy to see that Elaina has made so much progress. Glad to hear that her chest is getting closed. That's a tough thing to look at when it's open!!
Colin had fevers forever and no one ever knew why. He still gets them on and off. It is so strange. Hang in there!! Praying for no more setbacks and healing!!
Melanie & Colin
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