Tuesday, September 23, 2008

Not going as planned...again!

I was told last week that we would be moving to South Davis at the beginning of this week. As of right now, we're still in the hospital and it doesn't look like we're going anywhere fast. On Friday, we decided it was best to catch Elaina up on her immunizations. She can't have any that are live virus, this is a DiGeorge thing, but she can have all of the other ones. Well, on Sunday morning the doctors noticed that the site on her leg where the shots were given was very red, swollen and was hard. They drew a nice little line around the area to make sure that they'd notice if it got bigger and decided to just watch it. The redness is starting to gradually subside, but it's still swollen and hard. In fact, I think its poking out more than it was the other day. To make things worse, Elaina spiked a fever last night and this morning. The doctors took her down for an ultrasound of her leg, and she's got cellulitis! For those that don't know, cellulitis is an infection of the skin and the soft tissues underneath the skin. So now she's on a minimum of 7 days of Vancomycin and won't be able to go to South Davis until this is cleared up. Oh well, things were going so well that I guess I kind of anticipated a few more bumps in the road. Another thing that happened on Friday night was that Elaina spent another night in the sleep lab. She's been struggling on her c-pap at night, having de-satting episodes, so they wanted to find out what her optimal settings should be. They've decided to move her peep (the force of the air) from a setting of 10 up to 14, and decrease the amount of oxygen from 8-10 liters down to 4-5 liters. So far she's still having a hard time on the c-pap, but I'm hopeful that she'll adjust. I think the main problem is that the mask doesn't fit her well, and when she fidgets it slides off her nose and the air blows into her eyes. Poor baby. We'll get it all situated, eventually. In the mean time, we'll just hang out at Primary Children's! We've got good friends here and at least we're out of the ICU!

Just hanging out and behaving herself with the no-no's off!

Thanks for all the sweet birthday wishes for Ben. He had a great birthday and loved it when I'd read him the comments from "his" blog! I'm still trying to recover from the busy weekend, but it was worth every minute!


Mami Adame said...

So sorry for the "bumps in the road!" Meanwhile she looks so cute in her pink dress- yeay for a break from No-nos!
Her poor leg- ouch- give her kisses from us!


Tina:0) said...

Okay, sounds like she just doesn't want to leave her extended family in Primary!! Oh, how she'll love it when she's out of there, though!

She looks too cute in that pink outfit! Growing into such a little lady!

Praying that things straighten out & she's able to move forward soon!

The Portas said...

What an adorable pink outfit! She looks soooo cute laying there. And being so good, with NO no-nos!

Sorry to hear about the minor setback. You guys will get there! She will love saying goodbye to that place (and I'm sure you will, too!).

Saying lots of prayers for your little girl. xoxoxo

Stephanie said...

I hate the hard bump you get with shots. It seems to take months to go away completely! Still, it sounds as if your set-backs aren't quite a scary as they were a while back. Is she getting stronger?

OK, I need to know where I can get a set of no-no's. Ralph's been so naughty lately!

Much love to you both!

Nic & Ashley Haws said...

Oh Hollie, I am so sorry. Your little Elaina is such a sweet little girl. I'm so sorry she is going through so much. I wish I could take it all away. Hang in there. You are amazing.
Your friend,
Ashley Haws - IHH

carolyn q said...

I am sorry that she is having reactions to the immunizations. Hope also had to have the dead vaccinations due to her not having a spleen.
Thanks for letting me visit on Monday. . .it was wonderful to just seeing you cuddling her so close.
Praying for good things to happen soon and this bump will flatten out.
Heart Hugs,

Gourley Fam said...

Happy belated birthday Ben! It was awesome to meet you- I really am smitten with what an amazing brother you are to Elaina!
Elaina is so cute-love the outfit! I am sorry about the cellulitis. Gracie is moving to the floor hopefully tonight! Keep your fingers crossed and we are praying for your family!
Miss you guys!

Kathy said...

OH...I'd just pack her up and take her home (she'd fit in a back pack!)

She's getting SO BIG...what are you feeding her??

Glad to see she gets a "No No" break...do they make her arms stink?? or is that just an Isaac thing??

I hope you're doing ok...are you?? You must be feel frazzled and torn in half...you are doing amazing..pat yourself on the back for me please!


**oh...and do you want me to make Elaina a halloween costume??