So, we've now been in the PICU for 60 days. It seems like forever!
Not too much really going on. Elaina was able to have her sleep study last night. I won't know the results until Monday and then we'll start talking about getting out of here. I really don't see an urgent need for Elaina to be here now. She's getting all her medications by mouth, so no IV at the moment. The broviac is still in, but not being used for anything but labs, and it will come out as soon as we're ready to go out the door. I think it's just red tape that's keeping us here for the most part. We're on floor status, but not on the floor, so we've just been hanging out. Lots of snuggling going on here!! I took Elaina on another wagon ride, but the outside adventures were vetoed by the other doctors, so we've just stayed in the PICU. I'm pretty much doing all her cares and giving all her meds, holding her and just plain doing the Mom thing. I know that it will be much different once we get home, but I'm feeling up to the challenge. I realize my stresses will change, but it will be SO nice to be at my house and sleep in my bed. Not to mention, I am SO tired of cafeteria food!!! A good friend took me to dinner the other night and it felt so good to do something normal. It's not something that I've done in a long time, and I'm sure I won't be going out often once Elaina is home. I loved it!!
I think the hardest part about leaving the hospital will be the friends I've made here. There are so many other heart mom's (and other mom's!) that I feel so close to. It's amazing how having a child with medical problems draws families together. I'm going to miss seeing them, they are all so strong. Daxton, Teagan, Stella, Dylan, Jackson, Gracie, Brooklyn, and many others are here and still fighting their heart battles. Their parents have all given me strength and comfort during Elaina's stay here and I will miss seeing my friends. I will keep them in my prayers and in my heart.
I will know more on Monday, so I will try to post as soon as I have information. Could be we're out the door Tuesday or Wednesday. Of course I truly won't believe it until we're in the car and driving home!!!!!!!