Sunday, August 10, 2008

Day 60 in the PICU

So, we've now been in the PICU for 60 days. It seems like forever!

Not too much really going on. Elaina was able to have her sleep study last night. I won't know the results until Monday and then we'll start talking about getting out of here. I really don't see an urgent need for Elaina to be here now. She's getting all her medications by mouth, so no IV at the moment. The broviac is still in, but not being used for anything but labs, and it will come out as soon as we're ready to go out the door. I think it's just red tape that's keeping us here for the most part. We're on floor status, but not on the floor, so we've just been hanging out. Lots of snuggling going on here!! I took Elaina on another wagon ride, but the outside adventures were vetoed by the other doctors, so we've just stayed in the PICU. I'm pretty much doing all her cares and giving all her meds, holding her and just plain doing the Mom thing. I know that it will be much different once we get home, but I'm feeling up to the challenge. I realize my stresses will change, but it will be SO nice to be at my house and sleep in my bed. Not to mention, I am SO tired of cafeteria food!!! A good friend took me to dinner the other night and it felt so good to do something normal. It's not something that I've done in a long time, and I'm sure I won't be going out often once Elaina is home. I loved it!!
I think the hardest part about leaving the hospital will be the friends I've made here. There are so many other heart mom's (and other mom's!) that I feel so close to. It's amazing how having a child with medical problems draws families together. I'm going to miss seeing them, they are all so strong. Daxton, Teagan, Stella, Dylan, Jackson, Gracie, Brooklyn, and many others are here and still fighting their heart battles. Their parents have all given me strength and comfort during Elaina's stay here and I will miss seeing my friends. I will keep them in my prayers and in my heart.
I will know more on Monday, so I will try to post as soon as I have information. Could be we're out the door Tuesday or Wednesday. Of course I truly won't believe it until we're in the car and driving home!!!!!!!


Deanna said...

Oh I really hope that you guys get to go home...what a big blessing and miracle that would be!! On your walk today Elaina looked quite good, not too blue and rather happy. I hope and pray the best for you and her these next few days.

Amber said...

First off....I love the new header photo...her little hand with the heart..
Also, what an awesome God we serve! What a gift each day is....I'm still praying for strength and peace!

Cynthia said...

Beautiful picture of Elaina's hand with the heart! I know my children have always held my heart, so it is beautiful in so many ways.
I'm sure if feels odd and wonderful to be so close to going home. Living in the PICU is such an isolated experience from the rest of the world. I'm praying that the sleep study will help provide the support you need to get home. Peace and strength for you as you face finding what is right for your beautiful baby.

Vaeh's Blog said...

Everthing possible is crossed for you guys to get out of there this week.

Praying that she continue to do well & they let you go soon!

Sherri - KaysvilleMomma said...

My daughter has Di George --- she had an ASD, VSD, and an interupted aorta. We are also in Utah. I was to wish you luck!!! I have setup a new blog for VCFS families I would love to ad a link to you... please let me know if that is ok!!!

Mami Adame said...

We'll keep praying! So glad you are both doing well, it will be nice to see some pics of all of you at home!