Elaina was absolutely beautiful today! She was all dressed up in one of her hot pink dresses with a big flower in her headband. She was extra sweet and cuddly and made some really funny faces at me. She's found her tongue again and was actually smiling a big smile while sticking her tongue out as far as it would go. She wouldn't do it once I pulled out the camera, but I'll keep trying. She's starting to get a little bit ticklish, but hasn't quite figured out how to laugh yet. We played with some toys, sang some songs and I got in quite a few kisses (one is never enough!) during my visit.
When I got to South Davis today, Elaina was napping. She'd managed to wiggle out of one of her no-no's and was holding onto her oxygen cannula. I looked at the monitor, and her saturations were 81%! Not bad for having the oxygen out of her nose! While I was holding her, the alarm kept going off because she was as high as 89%! HOLY COW! She's doing this with a stuffy nose and a cough, I can't help but wonder what she'd be doing if she wasn't congested. Right now Cardiology doesn't want us to turn her oxygen any lower than 1 liter. At least those were the instructions that I was given before leaving Primary Children's. Although at that point, we felt that she was having a good day if she was 75% and didn't think that she'd ever truly sat over 80% on a regular basis. I'd been told that when she was 80% or higher, it was probably a false read on the pulse oximeter, and to be fair, that was most likely true at that time. But Elaina has been showing these high saturations for several days now, and I'm wondering if I should call her cardiologist and ask if it is still necessary for her to be on at least the 1 liter or if it can be turned down to 3/4 or 1/2 liter settings. We have a cardiology appointment on November 19, so I may just wait until then to ask, but it is so suprising to have her sats so high (for her!).
Anyway, my visit ended far to soon. They always do. :( I gave her some extra kisses, and put her back in her crib. The nurse was in the room, and I mentioned some concern about the tape (or lack of it, to be exact) on her NJ tube. I told her that I was worried about it getting pulled and she told me that she had re-taped it this morning and that it was quite secure. She was in the process of putting Elaina's no-no's back on as I left the room. I made my hour drive home, and no sooner had I given Ben his kiss and hug hello, and my phone rang. It was South Davis. The charge nurse was calling to let me know that my Sweet Little Miss Houdini had struck again. Somehow, she'd wiggled out of her no-no's and had pulled her NJ tube out of her nose. So, she had to take her 1st trip back to Primary Children's tonight to get her tube replaced. One of the nurses told me that she was so cute on the stretcher in her pink dress and big bow. She told me that Elaina was looking around and seemed excited to take her ride!! She's not back at South Davis yet, but they have been calling me with updates. The last I heard they were just waiting for the transport to come and take her back. Silly girl! She just doesn't understand that if she pulls it out, they've got to put it back in. In any case, I'm sure she enjoyed having no tube in her nose for the short amount of time that it was out.