Good news! She was able to tolerate coming off the ventilator and went straight to 1 liter of oxygen by nasal cannula. They have a ventilator on standby in her room, but it's looking less and less likely that she'll need it. Her oxygen saturations are in the high 70's and low 80's. She's in some pain, but the nurses are keeping on top of it. The doctor said that they are going to hold off on feeds for at least 24 hours. Right now it's still looking like we'll be in the PICU until tomorrow or Wednesday, then we'll go to the 3rd floor for a couple of days and then Elaina will be able to go back to South Davis. I've taken a few pictures, but the cord I need is buried in one of my bags and I can't get to it at the moment, so I'll have to post later. So far, so good. Thank you so much for keeping us your thoughts and prayers.
Love,
Hollie, Ben and Elaina
My cute little Elaina Bug
Grandpa's favorite smile!
Ben and Elaina, my luverbugs
Someone loves her big brother!
5 Days Old
Mom's First Kiss
Di George Syndrome Families
About Us
- Hollie
- North Salt Lake, UT, United States
- I am the lucky mother of two extra-ordinary children. My oldest is Ben. He is 10 years old and has more energy than even he knows what to do with. He is in 4th grade and is growing faster than I can keep up with him. My baby is Elaina. She was born in January of 2008. Elaina was born with some serious health problems. She has a Complex Congenital Heart Defect that includes: Pulmonary Atresia with an intact Ventricular Septum, right aortic arch, a leaky tri-cuspid valve and a large sinusoidal connection between her right ventricle and left coronary artery. She also has a chromosomal disorder called DiGeorge Syndrome or 22q11 deletion. In plain English, she was born with a rare but serious heart defect, as well as some other challenges. She had a bi-directional Glenn done in June of 2008. She is fed by g-tube, and continues to grow and amaze the doctors with her strength. She spent 18 months inpatient at South Davis Community Hospital after her Glenn procedure. She finally came home in April of 2010 and is thriving! She's in pre-school and loving life! Oh the adventures we have!!!!!
Family Photo
Mother's Day at home
Ben
1st Day at Tae Kwon Do
Elaina 4 months old
May 11 2008 - 1st Mother's Day
8 comments:
So glad that things went well!! Sounds like she's doing super - no more nasty tube down her nose - YAAAY!!!
oh..superstar indeed!
Ok...you'll have to ask us g-tuber moms all the tricks. (there's SO much the docs don't tell you)
i won't overwhelm you now..but, when you're ready..I'll write you a book!
kiss her cutie pie face for me!
We are so happy to read that everything went well today. Now she won't have to wear her little "no no's." This will probably be a huge blessing for her and for you!
Here's hoping for a very speedy recovery!
Kristi from IHH
Good for her! She's such a trooper... look how far she's come :)
Nathan's on the third floor just hanging out until the doctors decide exactly what bug he's picked up. I'll have to come and check on you tomorrow when I go back up.
So happy the surgery went well and she is already extubated!
You have some really good friends who can give you advice on the g-tube issues.
GOOD GOOD good news! I'm so happy everything went as planned and that recovery is going well. Give her lots of loves for me! Can't wait for cutie pics... xoxoxo
Prayers for a fast recovery! You are an amazing mother with two very special kiddos!
With love,
Summer Strickland (Mason's Mommy)
So happy to hear that she did so well! What a trooper! Hope things continue to go well, and she's settled back by the weekend! Good luck, we'll keep praying!
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