Wednesday, March 04, 2009

A Ray of Sunshine

Elaina is my sunshine.

Ever since I found out that I was pregnant with her, "You are My Sunshine" has been her song. Ben and I sang it to her just about every day before she was born, and I have tried to sing it to her every day that I am with her since her birth. There are some days that the words have been too hard to sing, so I just hum it, but it's her song. She is my sunshine. She brings such joy to my life!

This has been a pretty good week. I've had some hard moments, but I've tried to keep everything in perspective. On Monday, a sweet little one lost her battle with CHD. I've been following her blog since last spring when I met her parents up at Primary Children's. Gracie had HLHS, and passed away a week after she got a heart transplant. My heart has been so heavy this last week. I've wanted to blog, but felt at a loss for words. My heart and prayers are with this sweet family.

The things that have lightened my mood are being with my two children. Ben has been such a sweetheart. He came to me the other day after I'd finished reading an update on Gracie's blog. I had been crying and he wiped my tears and asked me what was wrong. I told him about Gracie and her valiant fight. That night at bedtime when we prayed, he prayed for Gracie and her family. It was truly remarkable that my 6 year old could demonstrate such love and compassion for another family. What an amazing little man. I love him SO much!

Elaina has been on the super sweet side this week too. She's over the c-diff, adjusted to the g-tube and back to her happy and sassy self.


She is teething, so she has her moments of being unhappy, but luckily a little bit of Tylenol seems to do the trick. She has brought me SO many smiles and has filled my soul with love. She LOVES kisses and has developed the habit of grabbing my hair and pulling my face to hers when she wants some extra loves. It's pretty cute. Even the nurses could tell that she was doing it to get some kisses from Mommy! Today we went for a follow up with her GI Surgeon at Primary's. He said that her incision is healing very nicely, and the stoma looks great. We'll be going back in a few weeks to get the long tube taken out and her button put in. (This doctor likes to wait at least 6 weeks to make sure that everything has had time to heal before switching things over.) He also said that we could start working on bolus feedings! Yay!!! No more continuous feeds during the day!!! He still wants her on continuous at night to help vent her tummy and give her a little extra nutrition, but we're going to start out with 3 oz every 2 hours during the day and slowly work it out to larger volumes spaced a little bit further apart. I am so excited! This is another step closer to being able to come home.

I've decided that for now I'm only going to be blogging once a week. If something important or exciting (or heaven forbid scary!) happens, I'll be sure to post. But things are just so crazy that I decided to make blogging part of my schedule and to try posting weekly. We really are in a good routine. I'm able to go up to South Davis 3 - 4 times a week to spend the afternoons with Elaina. I spend the mornings working and once I get Ben out the door, I'm off. The days I don't make the drive to Bountiful are spent running errands, doing laundry and working at my 2nd job. This job also carries over into the evening and sometimes later at night, so my free time to play on the computer is limited. The best part is that Elaina is stable. Stable is good. She's looking more pink all the time and starting to meet some of her milestones. She can almost roll over! She loves to grab and put things in her mouth! She's still developmentally delayed, but she is catching up and I'm very proud of her progress.

I thought I'd leave you with some pictures (as I promised forever ago!) from the last couple of weeks. They are in no particular order, just some of my favorites.

Today, smacking her lips at me!


Still smacking those lips!


Monday. She was trying to grab the camera out of my hands so that she could eat it! Her chin is a little bit chapped. I think it's from teething. She's putting everything to her mouth, even her stuffed animals!

This was last week. Even in the purple dress she's looking a little bit pink! Her saturations are in the perfect range, 80+ regularly!

Reaching for her mobile. If they put things too close to her she'll grab and not let go! There are beads hanging from the mobile and she loves to pull and hang on to them.

Another little sassy smile from Monday. Don't you just love her hair? Her tech Michelle loves to play with it and put it in piggies and ponies! Too cute!


I don't know if you can tell, but she's sticking her tongue out as far as it will go and then is "biting" down on it and smiling at the same time. Her smiling eyes are the charmers!

A Valentine's Day pic with her Valentine Teddy Bear.

She looks like she just got caught doing something. She was being super cute with the camera on Monday. Full of smiles and fun expressions!

Well, thanks so much for checking up on us! I'll post again next week!
Love,
Hollie, Ben and Elaina

12 comments:

Amber said...

I feel so "filled up" after all of those pics! She looks amazing....such an example of God's grace.
Is it me...or is she growing? She looks like she's filling the crib.
:0)

My heart breaks for Gracie's family. I read the final post and...lost it. I tell myself that I can't read critical blogs right now...but it seems with these heart babies...things change in an instant. :0(

Thank you for all the pictures...she looks SO good...and happy!

The Portas said...

Oh my gosh, those pictures are wonderful!! Your Sunshine is beautiful. It's so good to see all the different expressions on her face. And you're right, she does have smiling eyes.

Thanks so much for the update AND the pics. Hang in there, Wondermama, you are doing an amazing job.. xoxo

The G Fam said...

What a busy Mom you are! She is so cute! What a sweetheart Ben is. I still remember meeting him, and wondering whose cute kid he was, and when I discovered he was your cute kid, it all made sense!

mina said...

What beautiful, beautiful pictures for your princess!

Valerie said...

What a cutie! Glad to hear you're all doing so well. Love you!

The Hood's said...

She looks amazing! So glad that things are going well for all of you. Thanks for the update, and good luck keeping up with yourself!

Vanessa said...

I just had to come check on you guys. I'm so glad to hear Elaina is doing so well.

Love all the pictures!

Stephanie said...

Wow, she looks so expressive lately! Glad to see her pinking up a bit. Looking fabulous!

kate said...

Hi Hollie,

She is so sweet! I would love to meet her sometime if possible. It's been a long road from the carefree years of the old ward of our youth. You sincerely amaze me.

kath

kate said...

Hi Hollie,

She is so sweet! I would love to meet her sometime if possible. It's been a long road from the carefree years of the old ward of our youth. You sincerely amaze me.

kath

Nevaeh said...

Wow she looks even better than when I Nevaeh and I came to see her. That is wonderful. Thanks for posting the pics.

Kathy said...

She's getting SO big!

That's amazing that she's ready for bolus feeds already...Isaac has had his tube for almost 2 years...and we're still on a pump (taking 45 minutes for 6 1/2 ounces) every FOUR hours!

Glad to hear that all is well.