Time indeed marches on. You may have noticed that I've added a spot for Paul Cardall's benefit concert. Paul was born with Tricuspid Atresia as well as some other defects and has had many surgeries during his lifetime. I've met Paul, and he is currently awaiting a heart transplant. He's a member of the Intermountain Healing Hearts support group that I belong to. Anyway, please support the concert if you're local, or stop by his blog if you're not.
I was able to attend the funeral services for Mercydez, and it was truly a blessing to me. Nic and Ashley had such a blessing in their little angel. You could feel her presence there, the Spirit was so strong. I am still struggling with their loss and they continue to be in my prayers.
Things continue on in my life. Sometimes I start feeling like my life is so boring, because I'm in a routine, but it's far from boring! The stresses continue and so do the blessings that come from the trials. Ben had another seizure. Right now I'm not sure why. The doctor wanted me to give him a multivitan with Vitamin D and his neurologist wants us to follow up with him in a couple of weeks. If the seizures continue I may just have to adjust the dosage on his medication. It's dosed by weight and since he just went through a growth spurt, he may be outgrowing the dose prescribed to him last November. The kid's a rock! He weighs 66.4 lbs! He is one solid little guy! Other than the seizure, he's doing great and loving kindergarten. He's slowly learning how to read. He's struggling a little bit, he's convinced that the pictures tell the story, and so he doesn't want to look at the words, but we're working on it. He'll get there.
Elaina is doing okay. I was able to go and visit her today. She's caught something, but we don't know what yet. Just today she started coughing and having a runny nose. I'm not sure if the cough is from the mucus or part of the bug. She would cry each time she coughed (which made me wonder if she has a sore throat), and wanted to just snuggle and sleep. Her nurse finally gave her some Tylenol and that seemed to improve her mood a little bit. We'll be keeping a very close eye on this one, that's for sure! Her saturations were still very good today, she was 84-87% the whole afternoon. Maybe it's just more teeth???????? I hope that's all it is! She's still tolerating her feedings very well. We have an appointment with her GI doc next Wednesday.
Well, that's it for now! I hope everyone has a wonderful week! Thanks for all the love and support and thanks for checking in on us!
Hollie, Ben and Elaina