Thursday, January 22, 2009

Doing Well

This past week just seems to have flown by. I seriously don't know where the time goes! I was able to attend a Care Conference at South Davis a few days ago. It was nice to be able to meet with members of Elaina's "team" to get the full picture. Doctor, nurses, respiratory therapy, nutrition, child life, early intervention, etc. were all in attendance. The general consensus was good. Elaina is in a very stable place right now. They reiterated that she is still very fragile and the scales could tip very easily. I don't think that she'll ever get out of the fragile category. But stable is good. Her saturations are continuing to improve. She was between 88 and 90 when I was there for a few hours today. In fact, I thought she looked practically pink!! :) She's attempting to become mobile. She likes to scoot herself around in her bed. She'll start at the top of the bed and arch her back until she's at the foot of the crib. She turns herself sideways and sometimes trys to roll herself over. She gets about half way over and then runs out of steam. She's got the sweetest little personality. She's so playful and happy all the time! She really likes to watch Disney/Pixar movies. I think that she likes the colors and fun characters. Her favorites are Finding Nemo, Cars and Monsters Inc. She also loves to listen to fun upbeat music. We had a really good time today playing pat-a-cake, itsty-bitsy spider, and piggies on her toes. She is extremely tickilish but doesn't laugh out loud. So cute! That pretty much catches us up. Surgery is still planned for the beginning of February, her snotty nose and cough have cleared up, so hopefully she won't have any problems that could delay our big day. Well, I thought I'd finish up the post with a few pictures from my last couple of visits. She's just getting so big!! By the way, she weighs 20 lbs!!! But she's still at only 30% on the charts. Not bad for a little one that started life out at barely 5 lbs!




Sucking her thumb, I can't wait until the no-no's can be gone for good!



I think she might finally be teething. I don't feel a tooth quite yet, but she's drooling more and her gums feel harder to me. She rarely takes her fingers out of her mouth once her hands are free.



I think she was trying to talk to me. She's just so expressive!



Such a Big Girl! We'd just finished playing with some of her toys.



Chewing on some of her toy rings. I love how she is starting to explore things more with her mouth.



:) So cute! I love the ponytail on top of her head. :)



Her smile melts my heart every time!



Playing with her wires. At least it's not the NJ tube!



Trying to figure it all out.

Thanks for checking in on us!
Hugs,
Hollie, Ben and Elaina

10 comments:

Valerie said...

I love those pictures! She is just getting more and more expressive all the time, it's so amazing. I'm glad she's doing so well!!

The Hood's said...

So cute! I'm glad that all is going well for her! Pretty soon, she's going to be hard to contain! What a long way she's come in a year! Thanks for the update!

Vanessa said...

I'm glad you were able to meet with the "team". Sounds like she is in good hands. I'm also glad she is well enough to continue with her surgery next month. I know she will love having that tube out her nose. One less thing to pull on.

Oh and her pictures are adorable! I have to agree she is looking more and more "pink"!!! Wow...she is almost up to Ariannas weight and she is a year older than Elaina.

Thank you so much for the update and pictures. Give Elaina our love.

Kaidence's Mommy said...

She is soooo cute and getting to be such a big girl. Hey, Kaidence just earned herself a pair of "no, no's" as well for her o2 at night. Take care!

Kathy said...

oh...she's a princess for sure!
stable is awesome!!!

Mami Adame said...

She is seriously pinker! What a cutie she is!

The Portas said...

Oh my goodness, she looks AMAZING! So pink and plump and pretty. Her smile melts my heart, too!

Thank God for the stability that you are all experiencing right now. I will pray that continues!

Kisses to the sweet girl, and hugs to you all. xoxo

Djinni said...

Thanks, for keeping us up-to-date It's nice to see pictures, thanks for sharing them with us. I am glad to hear she is much pinker, she is such a sweetheart. I hope she stays pink.
Sorry I have n't talked to you much lately, our world has been so stressful lately with many troubles, from health and marriage to car troubles and so on, too much to go on about. Thanks for being a friend. Hugs, Djinni

Tina:0) said...

She's getting soooo BIG!! What a cutie-patootie!!

Souns like you had a good meeting with her team. Stable is Good! Are thy beginning to talk discharge? After th Nissen?

I can't get over her color!! She looks wonderful in the pictures! Its so amazing to see how far she's come!

Sending hugs!

The Hood's said...

Hollie, we are going private on our blog and I cannot find your email address to invite you to view. Will you send it to me? millehood@yahoo.com
Thanks, Camille