I got a wake up call this morning from the hospital. Elaina was really struggling to breathe last night, and so to protect her airway she was intubated this morning and put on a ventilator. At this point they are unsure why this sudden change occurred, but they didn't want to take any chances that she would stop breathing all together. They didn't have much more information for me, they are still running tests and said that they would have more news later. I am jumping in the shower and heading up to the hospital to be with my sweetie pie. Please, please, please keep her in your prayers.
Thank you!
My cute little Elaina Bug
Grandpa's favorite smile!
Ben and Elaina, my luverbugs
Someone loves her big brother!
5 Days Old
Mom's First Kiss
Di George Syndrome Families
About Us
- Hollie
- North Salt Lake, UT, United States
- I am the lucky mother of two extra-ordinary children. My oldest is Ben. He is 10 years old and has more energy than even he knows what to do with. He is in 4th grade and is growing faster than I can keep up with him. My baby is Elaina. She was born in January of 2008. Elaina was born with some serious health problems. She has a Complex Congenital Heart Defect that includes: Pulmonary Atresia with an intact Ventricular Septum, right aortic arch, a leaky tri-cuspid valve and a large sinusoidal connection between her right ventricle and left coronary artery. She also has a chromosomal disorder called DiGeorge Syndrome or 22q11 deletion. In plain English, she was born with a rare but serious heart defect, as well as some other challenges. She had a bi-directional Glenn done in June of 2008. She is fed by g-tube, and continues to grow and amaze the doctors with her strength. She spent 18 months inpatient at South Davis Community Hospital after her Glenn procedure. She finally came home in April of 2010 and is thriving! She's in pre-school and loving life! Oh the adventures we have!!!!!
Family Photo
Mother's Day at home
Ben
1st Day at Tae Kwon Do
Elaina 4 months old
May 11 2008 - 1st Mother's Day
6 comments:
I hope all is well and that she can come pff the ventilator soon!!! Praying for you all!
Melissa - IHH
Thanks for the updates. I check into your blog several times a day to keep up with you guys. Sending prayers and happy thoughts! Hope to see you soon.
I'm sending prayers your way. Hopefully this is just one of those speed bumps and she will be off the vent soon.
Hugs,
Vanessa
We've certainly been in your shoes! Many, many, many prayers coming your way. She's trying to tell them something, but their code breakers haven't got it yet! They will soon, & she'll be home before you know it, getting under your feet! Prayers of healing, strength & peace coming your way!
Tina & Vaeh:0)
We're sending prayers your way. I check your page a few times a day. At least she now has her own nurse to sit with her. Praying that her fever will break soon so they can fix whats doing on with her little heart.
Hugs
Melynda
Just talked with your mom and dad and they are on their way!
We are keeping you and your sweet little family in our prayers. She is a little fighter!
Love
Ann and Daren Snider and family
Kearney, NE
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