So far, so good today. Elaina's blood gases are looking better and her swollen face continues to go down. They are still doing deep suction in her lungs and are beginning to get more and more gunk out. This is good, the less gunk in her lungs the better! She's been able to go down to 60% oxygen so far on the ventilator. This is also good, she was at 85% yesterday. So, still the small baby (turtle) steps. The surgeon came by and looked at her chest today. He said that her heart looks great, but her lungs are still swollen. He may take another look later on to see how she's doing, and if he feels she's gotten rid of enough fluids he might close her chest tonight. Otherwise it will most likely happen tomorrow. We're not out of the woods yet, but I think I can see the clearing up ahead.
I think Elaina's new nickname is going to be "TurtleBug" :)
My cute little Elaina Bug
Grandpa's favorite smile!
Ben and Elaina, my luverbugs
Someone loves her big brother!
5 Days Old
Mom's First Kiss
Di George Syndrome Families
About Us
- Hollie
- North Salt Lake, UT, United States
- I am the lucky mother of two extra-ordinary children. My oldest is Ben. He is 10 years old and has more energy than even he knows what to do with. He is in 4th grade and is growing faster than I can keep up with him. My baby is Elaina. She was born in January of 2008. Elaina was born with some serious health problems. She has a Complex Congenital Heart Defect that includes: Pulmonary Atresia with an intact Ventricular Septum, right aortic arch, a leaky tri-cuspid valve and a large sinusoidal connection between her right ventricle and left coronary artery. She also has a chromosomal disorder called DiGeorge Syndrome or 22q11 deletion. In plain English, she was born with a rare but serious heart defect, as well as some other challenges. She had a bi-directional Glenn done in June of 2008. She is fed by g-tube, and continues to grow and amaze the doctors with her strength. She spent 18 months inpatient at South Davis Community Hospital after her Glenn procedure. She finally came home in April of 2010 and is thriving! She's in pre-school and loving life! Oh the adventures we have!!!!!
Family Photo
Mother's Day at home
Ben
1st Day at Tae Kwon Do
Elaina 4 months old
May 11 2008 - 1st Mother's Day
7 comments:
Glad to hear that things are going in the right direction! Even if its slow & sure, the tortise did win the race that way!
60% on the vent is great! That's so much closer to getting off that nasty thing!
Praying that all continues to go in the right direction for "TurtleBug"!
((BIG HEART HUGS))
XOXOXOXOXOXO
Tina & Vaeh (Jon & Gabby, too!):0)
What great news! Congratulations. Wishing her a ticket home. Romans family
I'm glad to hear that things are continuing to go well, no matter how slowly! Loves!
Praying for your "Little Turtle Bug" and that her shell stays tough on the outside, while heart heart stays soft, stong and sweet. Heart Hugs, Djinni
PS. You'll like the SL County's 2008 Summer reading Theme, it's all about Bugs.
TurtleBug...how cute! I'm so happy her vent settings are going down. One thing at a time.
Hugs!
Oh what good news. I hope they can get all the gunk in her lungs out soon, and also that she can have her chested closed.
Thinking good and happy thoughts for your family.
Hugs
Melynda and Family
I am a firm believer of turtle steps. We are praying for "turtle-bug" and pray things continue to go well!
Hugs and prayers,
Emily and Mike
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