This little girl never ceases to amaze me!
She is so strong and so beautiful and is just ..... AMAZING!!!!
Enjoy!
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My cute little Elaina Bug
Grandpa's favorite smile!
Ben and Elaina, my luverbugs
Someone loves her big brother!
5 Days Old
Mom's First Kiss
Di George Syndrome Families
About Us
- Hollie
- North Salt Lake, UT, United States
- I am the lucky mother of two extra-ordinary children. My oldest is Ben. He is 10 years old and has more energy than even he knows what to do with. He is in 4th grade and is growing faster than I can keep up with him. My baby is Elaina. She was born in January of 2008. Elaina was born with some serious health problems. She has a Complex Congenital Heart Defect that includes: Pulmonary Atresia with an intact Ventricular Septum, right aortic arch, a leaky tri-cuspid valve and a large sinusoidal connection between her right ventricle and left coronary artery. She also has a chromosomal disorder called DiGeorge Syndrome or 22q11 deletion. In plain English, she was born with a rare but serious heart defect, as well as some other challenges. She had a bi-directional Glenn done in June of 2008. She is fed by g-tube, and continues to grow and amaze the doctors with her strength. She spent 18 months inpatient at South Davis Community Hospital after her Glenn procedure. She finally came home in April of 2010 and is thriving! She's in pre-school and loving life! Oh the adventures we have!!!!!
Family Photo
Mother's Day at home
Ben
1st Day at Tae Kwon Do
Elaina 4 months old
May 11 2008 - 1st Mother's Day
7 comments:
Awww! So cute! What a big girl!
WOW, she is amazing. She has come so far and it makes my heart leap with joy.
(HUGS)
Carolyn
WOWOWOWWWW! This is so amazing! Thinking back to even just a year ago....she has come so far. Good job, all of you!
That is wonderful!!!
Hi
My name is Jenna and I came across your site. Ur daughter is an amazing, courageous, strong and determined little fighter. She is a smilen champ, inspirational hero and a brave warrior. I was born with a rare life threatening disease, and I love it when people sign my guestbook.
www.miraclechamp.webs.com
Hello, my name is Lara, and I just wanted to let you know that I recently found your blog. I hope you don't mind me reading it. My husband and I found out this past week that our 35 week unborn baby has TOF. I am trying to connect with other families as we begin this journey of dealing with a child with a CHD...
Nice Post !!Thanks for sharing your beautiful moments with us!!
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