Things are going well. Another INSANELY busy week for us. I've started working a 2nd job to help cover expenses, and I think I'm going nuts. Not because of the job, I LOVE IT! But because of the time that it is taking. Like my 1st job, it's something that I'll be able to do from home and do in my own time. But now, while I'm learning the ropes and getting started, it's taking up a lot of my time. I was able to see Elaina several times this week and she is doing great! Her sweet little personality is really starting to show, and boy oh boy does she love Mommy! :) Every time I go in to visit she is full of smiles, coo's and is just a wiggler! The last 2 times, as I've put her back in her crib when I'm ready to leave, she's started to cry. Talk about breaking my heart! I've stayed and played with her in her crib until she's happy and then sneak out while she's watching her mobile. The velcro strips on her no-no's have come off, so they have been putting socks on her hands to help her not pull at her face. Well yesterday, with her nurse at her side and socks on her hands, she pulled out her NJ again! Silly, silly girl. So she took a ride to Primary Children's to get it replaced. They told me that she was pretty happy to take the ride, and when she got back to South Davis she was exhausted and slept really well through the night. I was going to go in to see her today, but Ben woke up with a fever, cough and a tummy ache. After throwing up several times, he slept for a few hours, but he still isnt' feeling good tonight and I'm going to go and snuggle in bed with him and watch a movie. Poor kiddo. I guess it's the season. Well, please know that I check on all my blog friends all the time, but I haven't been able to post much due to how busy I've been. I will be able to move into my new place at the beginning of December, so hopefully things will calm down and I'll be able to post more often again. Elaina has her Cardiology appointment on Wednesday, so I'll be sure to let everyone know how she's doing. Hopefully this weekend will allow me to do some much needed catching up (on sleep as well as other things!)
Hugs!
Hollie
My cute little Elaina Bug
Grandpa's favorite smile!
Ben and Elaina, my luverbugs
Someone loves her big brother!
5 Days Old
Mom's First Kiss
Di George Syndrome Families
About Us
- Hollie
- North Salt Lake, UT, United States
- I am the lucky mother of two extra-ordinary children. My oldest is Ben. He is 10 years old and has more energy than even he knows what to do with. He is in 4th grade and is growing faster than I can keep up with him. My baby is Elaina. She was born in January of 2008. Elaina was born with some serious health problems. She has a Complex Congenital Heart Defect that includes: Pulmonary Atresia with an intact Ventricular Septum, right aortic arch, a leaky tri-cuspid valve and a large sinusoidal connection between her right ventricle and left coronary artery. She also has a chromosomal disorder called DiGeorge Syndrome or 22q11 deletion. In plain English, she was born with a rare but serious heart defect, as well as some other challenges. She had a bi-directional Glenn done in June of 2008. She is fed by g-tube, and continues to grow and amaze the doctors with her strength. She spent 18 months inpatient at South Davis Community Hospital after her Glenn procedure. She finally came home in April of 2010 and is thriving! She's in pre-school and loving life! Oh the adventures we have!!!!!
Family Photo
Mother's Day at home
Ben
1st Day at Tae Kwon Do
Elaina 4 months old
May 11 2008 - 1st Mother's Day
6 comments:
You are a busy woman!!!! I know you care. You do not even have to worry about commenting on my blog. (Just remember to switch over to our new blog come next week!) Miss you guys and thinking about sweet Elaina!
Heart hugs,
Emily
sounds exhausting. Hope things even themselves out for you!
Thanks for the update. She's a tricky one for sure! Hope Ben gets feeling better soon, and that you don't get it! Good luck with the new job, and don't forget to take care of you!
I'm constantly checking on you guys but don't for once feel like you have to post comments on our blog. You are one busy mamam.
I'm so glad your jobs are are working out for you. I hope Ben is feeling better. It definently is the season, thats why I'm trying not to go out as much as possible.
Give the kids my love! :)
Busy lady! I wish I could help out in some way. I'm glad your little girl is doing so well and I hope Ben feels better soon! xoxo
Hi,
hope everything is going well for you and your family. We haven't seen an update lately, so we're just wondering how you're doing.
Well, talk to you soon.
Sara and Stefano
Post a Comment