Sorry for not posting more lately. I have been SO busy that I barely have time to sleep! I have tons of pictures, but I am having problems getting them downloaded to my computer. Ben has been coming along on several visits and I was able to get some good pictures of the two of them together. Elaina really loves her big brother. She follows him with her eyes and smiles at his goofy faces. She especially likes to be tickled. There have been a couple of times that I thought I heard a small laugh, but then I couldn't get her to do it again. She's getting there though! She's still congested with a small cough, but no fevers. It seems to be getting gradually better. I'm chalking it up to season change and reaction to the flu shot she got a couple of weeks ago. Her sweet personality is really starting to show and I am so pleased. She is such a pleasant, happy little girl! She is easily entertained by her mobile and colorful toys. The nurses and techs at South Davis actually fight over who gets to play with her! It is so nice to know that she is so well taken care of! I am very anxious to be able to move to Bountiful. I think I finally found a place near South Davis. It is about 5 minutes away from Elaina, so if I needed to get there quickly it would be possible! If everything goes according to schedule, I should be moved into my new place before Christmas! My fingers are crossed! I am going up to visit Elaina on Saturday, my Aunt Marney is going to be in town and Ben and I are going to visit with her when she comes to see Elaina! I am very excited! I will take more pictures and hopefully I'll be able to get the silly things downloaded for my next post!
Love,
Hollie
My cute little Elaina Bug
Grandpa's favorite smile!
Ben and Elaina, my luverbugs
Someone loves her big brother!
5 Days Old
Mom's First Kiss
Di George Syndrome Families
About Us
- Hollie
- North Salt Lake, UT, United States
- I am the lucky mother of two extra-ordinary children. My oldest is Ben. He is 10 years old and has more energy than even he knows what to do with. He is in 4th grade and is growing faster than I can keep up with him. My baby is Elaina. She was born in January of 2008. Elaina was born with some serious health problems. She has a Complex Congenital Heart Defect that includes: Pulmonary Atresia with an intact Ventricular Septum, right aortic arch, a leaky tri-cuspid valve and a large sinusoidal connection between her right ventricle and left coronary artery. She also has a chromosomal disorder called DiGeorge Syndrome or 22q11 deletion. In plain English, she was born with a rare but serious heart defect, as well as some other challenges. She had a bi-directional Glenn done in June of 2008. She is fed by g-tube, and continues to grow and amaze the doctors with her strength. She spent 18 months inpatient at South Davis Community Hospital after her Glenn procedure. She finally came home in April of 2010 and is thriving! She's in pre-school and loving life! Oh the adventures we have!!!!!
Family Photo
Mother's Day at home
Ben
1st Day at Tae Kwon Do
Elaina 4 months old
May 11 2008 - 1st Mother's Day
5 comments:
Hollie,
It has been so long since we've talked. I have been reading your blog and Elaina looks so happy at her new place. I am so happy you will be moving to Bountiful and I'm hoping our house will sell soon so I can move there, too. Stella is doing great! I have been a major slacker and I don't even remember the last time I updated her blog. Anyway, give me a call because I lost all the numbers in my cell phone. I would love to meet you for lunch one day while you are in Bountiful. Love and miss you, Sara
I am so glad that you found a place! If you need any help moving I'd love to volunteer (and my hubby too!). You just let us know.
I have been wanting to come up and visit. I may have to wait a little while now that Kaidence is having issues with rejection. Just know that I think of you everytime I pass south Davis. Let me know if you need anything. I am only a couple minutes away as well.
That is good news on your move. Will this affect your job? Didn't I read somewhere that you also are able to work from home? How is big brother handling the news about moving? I bet he is scared and excited. I think that is wonderful that you will be so much closer to Elaina. The time you travel and price of gas? That is great. So I know Elaina is doing better, how long will she stay at South Davies?
HOpe all is well.
Kaci
Well, I am so happy to hear that she is doing good. It's been so long since we talked. How are you doing? When do you move? We are moving to Logan on the 22nd. So, we will be able to visit now. Keep in touch
Angie
Post a Comment