Tuesday, January 19, 2010

Catching up and the Holidays!

WOW! So much has happened since my last post, and the days just seem to get away from me. So let's see if I can do a "quick" catch up. Ha!

Since I last posted:

Elaina had a cardiology appointment. It went well. They told us to come back in 6 months! She had an echocardiogram (not sedated) and was a very good girl. She held very still as long as I was holding her hand and she had her pacifier. She kept sneaking little looks at me, and would smile, as if she knew she was being good. Too cute. The results of the echo were EXCELLENT! In fact, the cardiologist said that her heart function looked to be in the NORMAL range for her stage of heart repair!!!! WITH GOD ALL THINGS ARE POSSIBLE!!!!! What a tremendous answer to many, many, many, many, many prayers offered by many people. Our Cardiologist was unavailable due to an emergency, so we got to see one of the many cardiologists that took care of Elaina during her long stay in the PICU. In fact, it was the same doctor that performed her coil occlusion in July of '08. He hadn't seen her since her discharge from the PICU, and at that time, there still was not much hope for her recovery. He was amazed by her color, her saturations (from 80-90% on 1 liter of O2), and her overall state of health. He said that they weren't able to get a very good look at her pulmonary arteries, and that the best way to determine their function would be in cath lab. He thought they "might" be able to stent them open at this point to allow better blood flow and help her become eligible for heart transplant. This is still a big IF, but at least it's something that's on the table. We'll discuss it further at her next appointment. All in all, he was very impressed with Miss Elaina! Way to go baby!

We had a wonderful Thanksgiving spent with family. This was the first time in over 10 years that I was able to spend Thanksgiving with my parents. It is really wonderful that they now live 5 minutes away from me and that I'm able to spend time with them! After the amazing dinner, I was able to go pick up Elaina and take her to Grandma's for the rest of the evening. She loved it! She was able to roll all over the floor and got lots of loves! She actually had a couple "stranger anxiety" moments, that's new! But in a good way, it means that she's finally reaching some developmental milestones.

Elaina with Grandma on Thanksgiving.


CHRISTMAS!! We had lots of fun the month of December. Santa made it to South Davis 3 times, the kids there were super spoiled. Elaina wasn't scared of Santa in the least. Ben was pretty nervous the first visit, but by the 3rd time, he was a pro. It was so cute. He's at that age when he's hearing things at school and trying to figure the whole Santa thing out. Going in for the 1st visit, he was trying to convince himself that there was no Santa, that it was all a hoax. He was pretty shy when he saw Santa, but sat on his lap and asked his little heart out. Then, as we were leaving it was starting to snow. He looked at me, and in a the voice of true Santa believer said "He IS real Mom! It's snowing, he brought the snow with him from the North Pole! Mom, the Jolly Guy is real!" Hahahahaha! He makes me laugh. So, the big news for Christmas? Elaina got to come home for 3 whole days! Yay! I brought her home the morning of the 23rd and got to keep her until the afternoon of the 26th. We did lots and lots and lots of "normal" things. Played (and napped) on Mommy's bed, lots and lots and lots of floor time, even baked cookies together on Christmas Eve. It seems like it took forever for Christmas to get here, but once I got her home the time just flew. The first night was a little rough, she was unsure of her new surroundings, but by day 2 she was loving being at home. I didn't even mind that she wanted to be awake and play at 6 am. It was precious time together and I will always cherish it! It really was good to have her home for those few days and it makes me anxious for the time that the doctors feel she can come home for good. It will be a lot of work for this Mama, but having her here made my home feel complete. Here are some pictures from our Christmas season. I have more posted on Facebook. If you want to see them, simply click here.

Ready to visit Santa

Santa!

Snuggle time with Ben after visiting Santa.


Hanging out in her crib while we put up the tree in her room.

Pictures from HOME!

Coming home was lots of work! After playing on Mommy's bed for a little while, it was time for a nap!


Floor time!


Christmas Eve
Ben got Operation from Aunt Kathryn and Uncle Don and Elaina got a dolly.
It was lots of fun to have visitors at our house!



Christmas morning.
Playing with some of her new toys in her exer-saucer.


I took this one when we were loading up to take her back to South Davis. I love how she has her hands folded up and the sweet look on her face. I wish we could have kept her home, but the time will soon come!


I just need to say what an incredible Holiday Season we had. There were so many things to be thankful for, so many blessings to count, and so many miracles to witness. It was magical. We truly created some priceless memories and I am so grateful! I love my children and I love that we were able to celebrate the birth of our Savior together as a family. I don't know what's in store for this next year, I only hope that we will continue to see miracles and that our love for each other will strengthen and grow.


Lots of fun going on in January, but I think I want to give it a post of it's own. :) This milestone deserves it. Also, it's really late and if I don't post this now, it won't get done! Look for a new post in the next day or so! (I've got all the pictures ready!)

6 comments:

Amber said...

The post we've been waiting for! Oh my goodness...to witness a miracle is just...well, thank you for allowing us the opportunity to pray for her and love on your family!
She looks SO grown up! To see her at home...brought so many tears...good ones this time!
Looking forward to the next post...

Stephanie @ Ralphcrew said...

So wonderful to see her at home! Love that her echo results were so good. Yes, God is good!

Monica said...

Hey! I didn't know you had a blog. I just saw the update on Facebook so I thought I'd check it out! We have a family one too but it's private. Send me your email address and I'll send you an invite if you want to. It's monicammparker@yahoo.com. I love seeing the pictures and hearing about the updates with your little family. It was good to see you guys at Christmas!

The G Fam said...

Your kids are growing way to fast! What wonderful pictures and what fun memories!!!!

The Portas said...

Wow, what an amazing holiday season you guys had. Also, what a great card report! How wonderful!! Like you said, at least there is something on the table. And I think it's great that the cardiologist was so impressed with how far Elaina has come. The pics of the three of you AT HOME just about made me burst into tears. Even if it is for just a few days at a time, what a huge blessing! This update put smiles all over my face. Thank you so much for writing this up (and for all of the pics). xo

Sherri said...

Sounds like good news! I am so glad you posted!!!!! I have been worried about you guys! Love and prayers! I really would love to come and meet you and Elaina sometime. I am going to request you as a friend of Facebook.