Thursday, April 09, 2009

A Light at the end of the Tunnel....

I had a Care Conference at South Davis.

It was WONDERFUL!!

Here's the best part:

Her doctor looked at me and said, "So, when do you want to take her home?"

YAY!!!!!!!!!!!!!!!!!!!!!!!!!!!
Time for a BIG Happy Dance!!!!!!!!!!!!!!!

Okay, so I can't take her home just yet, but it's out there. We're discussing it. It's going to happen. She still needs to be cleared by Cardiology and we don't see them until May 27th. In the meantime, I get to start learning her cares (g-tube, etc.), they are going to fine tune her meds, and Elaina will be working more with Early Intervention. If things go as planned, I could have her home in early June! I am SO excited! The best part is that she won't be coming home on Hospice, she'll just be coming home.
HOME!
Okay, can you tell I'm little excited about this? As long as she continues to be stable. As long as she continues to sat well. As long as she doesn't have any setbacks, she's coming home. I just can't stop saying it! She's gaining weight so well that they are going to cut back her calories. Everything that was talked about in the care conference was positive.

Thank you all so much for your love and support. I am so grateful for a kind and loving Father in Heaven! I am so grateful that He has allowed Elaina to blossom and grow. I know that it is through His Mercy, His Love and His Divine Plan that she is here. I am so grateful for my Savior. What a beautiful Easter season. My thoughts dwell on the beautiful loving gift that the Savior gave us. He suffered for all of us, He knows the pain that Elaina has gone through, as well as the grief that so many us of have felt in our lives. I know that God lives and that He loves us! I am so Grateful that my heart is overflowing!
Hugs,
Hollie, Ben and Elaina

29 comments:

Melissa said...

I can't wait until she is home with you. I'm doing the happy dance too!!
hugs,
Melissa

Kingsford Family said...

Oh Hollie, I am SO happy for you! What great news. We'll pray that she continues to do well and can be home on schedule or earlier!

Michele

Amber said...

YAY!!! I am thrilled! Many prayers...that she stays on this course...and is home in no time.
:0)

The Portas said...

What a wonderful thing to read first thing in the morning! WOW!! This is amazing news. I can just feel your happiness oozing out of this email, and it is so deserved. I couldn't be more happy for you about this news. Your little girl is amazing.

Have a WONDERFUL weekend. xo

Jake & Stephanie Ellinger said...

That is AWESOME!!! What a treat that will be for you and Ben! I'm trying to remember if Cowley is your cardiologist...

Anyway, we'll keep hoping that she continues to blossom and show off how well she is doing for everyone!


Quick question for you: was Elaina ever seen by an immunologist? Genetics wants to have Nathan seen by one. They did the FISH and micro array and both came out negative for DiGeorge (although they said that in almost every way, shape and form he still looks like one of those kids). They're sending us to immunology to seal the deal.

Aimee Hardy said...

Hollie, that is such great news. I am so happy for you guys. Good job Elaina!

Christina said...

My oh my, how WONDERFUL!!! I am so excited for you guys!
Hugs & Prayers,
Christina

Heidi said...

Wow. That is some of the best news I've heard in a LONG time!

The G Fam said...

Whoot! What GREAT news!!!

Bethany said...

That is such great news! I can't wait for the weather to get stable so me and Kaylee can come visit (one of us always has a cold these days). We'll keep praying for all of you.

Kaidence's Mommy said...

I can't beleive it, I am so excited for you!!!!!

Heart Mommy said...

What wonderful news... This is the best. It has been a long road of recovery with little miss. What great news to finally have the Home word. So does that mean you will move? Does this change anything????

mina said...

Great news!

Lady said...

HOORAYYYY!!!!!!!!! Way to go, Elaina!! :) :) :) :)
*happy dance*

Tina:0) said...

WOOO-HOOO!!!! Way to go, Elaina!! Can't wait to see pictures of you from... HOME!!!

The Hood's said...

Amazing! She is such a strong little girl (I'm know she learned that from her mother)! What an exciting time for you guys! Good luck! Keep up the good work Elaina!
Camille

Sherri - KaysvilleMomma said...

Congrats!!! My prayers are with you!

Vanessa said...

I'm so happy to hear about the wonderful meeting. Yes, Elaina Bug will be going home! Praise God!

Ryan and Hilary said...

HOME!! What an amazing word!! I am so happy that it is in the near future. This little one has definatly come a long way and has proven all those doctors wrong. I love it!!

Pace and Liz said...

Hollie, that is so exciting that Elaina will be going home. We'll keep praying for everything to go well.

Liz

Melynda said...

:D We're soo excited to read the news! Cant wait until your home with BOTH of your babies.

<3 heart hugs
The Andersons

Sara and Stefano said...

Hollie,
There are no words to say how happy I am for you!! This has been such a long fight for you and you have been so strong the whole way through! Not only are you an amazing mother, but you are also a wonderful friend. Your beautiful baby girl is coming home and I couldn't be happier!!
Love you, Sara

Kathy said...

OH MY GOSH!!! I'm doing the happy dance...can you see it??

You don't worry...you know TOO many moms...we'll write a manual on taking care of that g-tube...piece of cake! I know been is so excited...what an awesome helper he's going to be!

Brad and Angeline said...

That is such great news! We are so happy for you! If you need anything to get ready, help getting ready just call me! GOOOOO Elaina!

Mami Adame said...

How exciting!!!! I am so happy for you, Ben and most of all for Elaina!

Tami Acord-Nelson said...

CONGRATS!"
What a long year you have had! I am so happy that you have a light at the end of the tunnel! My thoughts and prayers are with you!
Tami, Thatchers mom

Anonymous said...

I have been away for a week and am just reading this now! That is such marvelous news!

What a blessed time it is for your entire family lately! I will continue to pray every day for Eliana
hugs,
Cecilia

Megz said...

Hollie, I cannot believe we are reading this post today! I spoke with Liz not even an hour ago and she didn't mention Home at all! Elaina is looking so beautiful, and I'm so happy for this good news!

Anderson Family said...

I fell off my blogging bandwagon for a bit so I am just reading this update - what wonderful news! Oh she so deserves to go home after all she has been through. We think of you guys often and hope she continues to improve.

Kristi
Mom to Carter