Well, life continues to be hectic. It seems that there is never enough time to get everything done that I need to. Elaina is doing very well. She's not throwing up as much the last several days, and her NJ tube has stayed in for over a week now! She's happy and smiling and cooing and growing, growing, growing!!! She will be 11 months old on Thursday! Holy Cow!!! When she was born in January and I was told about her heart condition and then with the events of the summer following her Glenn, I didn't think that I would be able to celebrate her 1st birthday. Now that day is just a little over a month away, and it's looking like we'll be able to have a fun Birthday celebration for her! Still no word on when they are going to schedule her g-tube surgery, but I keep asking. She's still struggling with a runny/stuffy nose, but it doesn't seem to be affecting her saturations or her happy disposition. She is just the sweetest thing and I'm thrilled to be able to plan her first Christmas this year. South Davis allows decorations (including small trees) for 1 week before Christmas and 1 week after. I've got the cutest little tree ready to go and a couple of wrapped presents as well as other fun decorations for her room. I'm so excited!
Ben is doing okay. We got the results of his EEG back, and it shows some abnormal activity in his left frontal lobe. We've met with a neurologist and he is somewhat concerned. He told me that the type of seizures that Ben is experiencing usually occur when the child is sleeping. His 1st two seizures did happen in his sleep, which would be expected according to the EEG and neurologist. The fact that he has now had two more seizures while awake is very concerning. The doctor started him on some medication and ordered a sedated MRI. The MRI results are not back yet, so I'm still on pins and needles wondering and worrying about him. I've had such a hard time sleeping. I keep checking on him throughout the night because I am so worried about seizures. He seems to be his normal self though. He's SUPER excited for Christmas and has already mailed 3 letters to Santa! It's so fun to watch his enthusiasm.
Well, that's about all the news. I've been burning the candle at both ends. I'm working 2 jobs, taking 2 kids to doctors appointments and still juggling my time between Ben and visits to Elaina. My move has been delayed a couple of weeks, but I'm still hopeful that I will be in my new place by Christmas. I'm excited for the move, mostly because I'll be so much closer to my ElainaBug, but I'm dreading the packing, etc. I've got lots of helpers lined up, so hopefully it will be an easy move this go around. Things really are looking up. Deciding to take on my 2nd job is really going to benefit my family in the long run, so it really is worth all the lost sleep and stress it's giving me right now. I am so grateful for all the blessings that my Father in Heaven has given me and I am looking forward to celebrating the birth of the Savior this Christmas.
All my love!
Hollie, Ben and Elaina